Well, it is just over a year since I was first diagnosed with late stage lyme disease. And the good news is there has been great improvement! The bad news is the treatment is no where near over. When I was first diagnosed I was at an overall 30% – a year later I can honestly say I am about 60%. Instead of always feeling awful I have good days and bad days and the good days have started to be more frequent which is so very exciting.
As for the details on my treatment – I was able to stop blood thinners as my blood clots are finally gone after six months of injections. They didn’t find any blood disorders that would cause the blood clots so they are assuming it was the birth control. This means no hormones of any kind ever and if I ever get pregnant it will be automatically a high risk pregnancy. The good news is that the shots have stopped – which is really nice because my poor stomach was looking like a punching bag.
I had my port placed again in late April to continue the IV treatment. I am now taking cefotaxime and azythromyacin. The cefotaxime is in place of the ceftriaxone because it created gallstones and sludge. Hopefully my body will naturally remove the gallstones and sludge now that the medication has been changed.
I have been traveling a lot which is always amazing for my emotional well being but my body isn’t taking it all that well. I have started being active again through Camp Gladiator – which is a great group training camp. They have been great having to modify based on my treatment and limitations.
Nathan moved to San Jose last month for work – hopefully it is temporary – but for now treatment becomes very difficult all by myself. I never realized how much I was relying on him to be around and help me until he left and it has been the hardest part since I got sick 2 years ago. Luckily I have amazing friends that help as much as they can 🙂
Very short and sweet update but wanted to let you all know what was going on!!