The last two weeks have been a challenge. I’ve been trying to use oral antibiotics but they have just been upsetting my stomach to the point that I can’t eat without being heavily medicated. Which of course then spirals down to no energy, weak and faint.
I’ve been working with my doctor to switch to IV antibiotics in the hopes that the medicine will bypass my digestive system and allow me to eat without being heavily medicated.
So then the next decision, to use the normal pick line or to opt for a port-a-cath. Most Lyme patients use a pick line, since it is less invasive. I spoke with nurses and doctors about both options and I decided to go with a port. I want to be able to swim, take baths, go to the gym and be active.
So the down side is having to wait. I’ve been waiting for over a week to just get a date. In the mean time I am stuck being heavily medicated and bent over nauseous. Finally today I got a call from the hospital scheduling my pre-op for Friday and still no surgery date.
The other major pain point – I’m supposed to be on a plane Tuesday back to Austin for our major event. My work has just been amazing through all of this, letting me work remotely and understanding my schedule is based on how I feel and now I feel terrible letting them down but I also will be no help if I don’t start IV and I’m over medicated.
Nothing about this gets easier….